As a Research Registry Operations Director of DigitalMe, reporting directly to the Head of Biocomputing and Principal Investigator for the program, you will be a leading force among a creative and matrixed team of dedicated scientists, product developers, and patient community experts to lead the instantiation and growth of the DigitalMe longitudinal cohort program that collects and analyzes experiential, environmental, biological (‘omics: RNA and DNA sequencing, immunosignatures, metabolomics, proteomics and other molecular measures) and medical data to create a digital “avatar” of the participants.  When possible, we seek to give back data, aggregated results, and/or individual results to participants.  We also aim to empower our participants to be citizen scientists and together, learn new things about human health.  We believe that this program has the power to change how we live, through the creation of a research ‘sandbox’ with an unprecedented depth of data – so much so that our research team, even if we quadrupled it in size, wouldn’t be able to analyze it all in our lifetimes.  Therefore, part of this program is the creation of a portal to make its data and insights available to research partners throughout the world.  

As the Research Registry Operations Director for DigitalMe you will be responsible for the following:

  • Working together with the other dedicated, passionate scientists in our organization to instantiate and design the cohorts and study in a way that meets product needs, but also patient needs by reflecting the demographics of the population we wish to serve
  • Growing an external governance team/advisory board to support this effort, and running regular meetings with them to continually improve the program
  • Develop and implement a strategy for making participant data publicly available to researchers under ethical and regulatory guidelines
  • Support prosecution of a scientific return of results strategy, that complies with ethical, legal and regulatory requirements and guidelines
  • Support community and marketing teams to ensure a high-quality experience for the participants of the program
  • Work with the product team to develop the technology and infrastructure required to scale the program, and make the data and insights available to patients and partners
  • Work with our VP of Policy and Ethics and our development team to submit relevant protocols, subprotocols and consent documentation to our IRB
  • Support the regulatory team in delivering documentation to the FDA, when necessary
  • Collaborate with the phenotype team to prioritize the creation and improvement of key patient-generated health data elements that are required to fulfill DigitalMe scientific needs to the degree of validation required
  • Collaborate with lab ops and product to design ways to test new products, interventions, or biosample collection methods as subprotocols to the program
  • Generate quality measures and performance accountability for different elements of the program (e.g., tracking participant consent, ensure that participant feedback is collected and tracked, track different consent forms that have been signed by the same individual, etc.)

The candidate will have some or all of the following qualities

  • MA or Ph.D (or commensurate experience) in epidemiology (or a related scientific field). Experience with omics data or molecular biomarker discovery/development is a plus
  • Experience designing longitudinal cohort studies with an emphasis on biomarker development, and/or return of results and/or molecular+patient generated health data analysis
  • Experience running matrixed research programs, including managing resources and a budget
  • Can influence cross functional teams through intelligent communication and competence
  • Is passionate about serving the participants of the study through outstanding science
  • Desire to solve extremely complex problems with scientific rigor, integrity and systematic attention to detail
  • Experience in a startup atmosphere is a plus (but not a requirement)

About PatientsLikeMe:

In January 2017, we formed the Digital Life Alliance that includes the companies iCarbonX, PatientsLikeMe, and HealthTell.  Our vision is to fundamentally transform the healthcare & wellness of individuals & communities by unlocking the power of deep & dynamic digitization of biological information. By combining multi-omics biological data, smart device biophysical data and patient’s phenotypic data with artificial intelligence, we will enable a real-time, deep assessment on one’s health and wellness, and deliver a personalized guide and range of products to help people live a healthy, longer life. To achieve our vision, we are developing state of the art multi-omics technology platforms to digitalize biological data and apply insights gained from the process into development of medical and wellness products.

PatientsLikeMe is an equal opportunity employer.

Apply for this Job

* Required
Almost there! Review your information then click 'Submit Application' to apply.

File   X
File   X
When autocomplete results are available use up and down arrows to review
+ Add Another Education

U.S. Equal Opportunity Employment Information (Completion is voluntary)

Individuals seeking employment at PatientsLikeMe are considered without regards to race, color, religion, national origin, age, sex, marital status, ancestry, physical or mental disability, veteran status, gender identity, or sexual orientation. You are being given the opportunity to provide the following information in order to help us comply with federal and state Equal Employment Opportunity/Affirmative Action record keeping, reporting, and other legal requirements.

Completion of the form is entirely voluntary. Whatever your decision, it will not be considered in the hiring process or thereafter. Any information that you do provide will be recorded and maintained in a confidential file.

Race & Ethnicity Definitions

If you believe you belong to any of the categories of protected veterans listed below, please indicate by making the appropriate selection. As a government contractor subject to Vietnam Era Veterans Readjustment Assistance Act (VEVRAA), we request this information in order to measure the effectiveness of the outreach and positive recruitment efforts we undertake pursuant to VEVRAA. Classification of protected categories is as follows:

A "disabled veteran" is one of the following: a veteran of the U.S. military, ground, naval or air service who is entitled to compensation (or who but for the receipt of military retired pay would be entitled to compensation) under laws administered by the Secretary of Veterans Affairs; or a person who was discharged or released from active duty because of a service-connected disability.

A "recently separated veteran" means any veteran during the three-year period beginning on the date of such veteran's discharge or release from active duty in the U.S. military, ground, naval, or air service.

An "active duty wartime or campaign badge veteran" means a veteran who served on active duty in the U.S. military, ground, naval or air service during a war, or in a campaign or expedition for which a campaign badge has been authorized under the laws administered by the Department of Defense.

An "Armed forces service medal veteran" means a veteran who, while serving on active duty in the U.S. military, ground, naval or air service, participated in a United States military operation for which an Armed Forces service medal was awarded pursuant to Executive Order 12985.

Form CC-305

OMB Control Number 1250-0005

Expires 1/31/2020

Voluntary Self-Identification of Disability

Why are you being asked to complete this form?

Because we do business with the government, we must reach out to, hire, and provide equal opportunity to qualified people with disabilities1. To help us measure how well we are doing, we are asking you to tell us if you have a disability or if you ever had a disability. Completing this form is voluntary, but we hope that you will choose to fill it out. If you are applying for a job, any answer you give will be kept private and will not be used against you in any way.

If you already work for us, your answer will not be used against you in any way. Because a person may become disabled at any time, we are required to ask all of our employees to update their information every five years. You may voluntarily self-identify as having a disability on this form without fear of any punishment because you did not identify as having a disability earlier.

How do I know if I have a disability?

You are considered to have a disability if you have a physical or mental impairment or medical condition that substantially limits a major life activity, or if you have a history or record of such an impairment or medical condition.

Disabilities include, but are not limited to:

  • Blindness
  • Deafness
  • Cancer
  • Diabetes
  • Epilepsy
  • Autism
  • Cerebral palsy
  • Schizophrenia
  • Muscular dystrophy
  • Bipolar disorder
  • Major depression
  • Multiple sclerosis (MS)
  • Missing limbs or partially missing limbs
  • Post-traumatic stress disorder (PTSD)
  • Obsessive compulsive disorder
  • Impairments requiring the use of a wheelchair
  • Intellectual disability (previously called mental retardation)
Reasonable Accommodation Notice

Federal law requires employers to provide reasonable accommodation to qualified individuals with disabilities. Please tell us if you require a reasonable accommodation to apply for a job or to perform your job. Examples of reasonable accommodation include making a change to the application process or work procedures, providing documents in an alternate format, using a sign language interpreter, or using specialized equipment.

1Section 503 of the Rehabilitation Act of 1973, as amended. For more information about this form or the equal employment obligations of Federal contractors, visit the U.S. Department of Labor's Office of Federal Contract Compliance Programs (OFCCP) website at

PUBLIC BURDEN STATEMENT: According to the Paperwork Reduction Act of 1995 no persons are required to respond to a collection of information unless such collection displays a valid OMB control number. This survey should take about 5 minutes to complete.